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We must ask our doctors and insurance companies to take this matters seriously. I have already called my insurance and they called me back and asked for details. So that's good.
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We must ask our doctors and insurance companies to take this matters seriously. I have already called my insurance and they called me back and asked for details. So that's good.
I agree with #158958. If there's a problem in my blood vessels, fix it.
We the MS sufferers are the ones who should decide to take the risk. Its ok for the doctors to have us take risks in taking meds that are experimental, but they want to slam the brakes on this procedure.
I for one will travel to the US, get the MRI, and get this procedure done now, if the MRI shows I am a candidate.
I do believe that everyone who is slowing this down is funded by the drug companies, curing MS, or any illness< is really bad for business.
Way to go Dr Zamboni.
This seems to be quite simple and straight forward. If you have MS(I do) or Not, have your veins checked out and if they are blocked get them opened. This is common sense. A rational person or physician would not want to have blood flow restricted to their head no matter what. I am also sure that insurance companies and many doctors will see this as a threat to their wealth strategies and attack it vehemently. Maybe we should have their veins blocked that go to their heads, eh!
I'm going out on a limb here.....regarding higher incidences of MS the further away from the equator could relate to the fact that there are just as many with kinked veins near the equator but maybe since it's warmer there that their blood is thinner and is more able to move through the blockage? JUST a thought. Otherwise, I think Dr. Zamboni will win the Nobel prize for this finding! And shame on the doctors who are already dismissing his findings without even looking into this more. I emailed the info to my husband's neurologist and she "guaranteed" me that my husband didn't have kinked veins nor would he need surgery. Via email? Really? Unless she had the MRV to disprove it she is a certified nut-case! Oh well, all I can say is my husband will NOT go back to her ever again!
My first visit with the MS Specialist is 12/18. I called them today to learn if they had received the medical records from my previous MD (a "regular" neurologist) - they had. I also mentioned the "Liberation Treatment" and that I'd like to fax over the text version submitted by Leo on 11/22.
The nurse that I spoke with was ignorant of LT, but so very kind and polite. I'll report what I learn from the 12/18 visit.
In the meantime, a good friend is an ER MD and he encouraged me to pursue this. He read the article and watched the CATV program and found it commonsensical - although he is skeptical - as he should be.
i always said that when i booze my symptoms feel much better... this makes perfect sense since we all know booze thins your blood. this is it people!... this is really something profound.. F the ms societies and drs that gives speeches for money... SPREAD THE WORD. please spread the word or this will be swept unda the rug. we all know cash is king. as an ms sufferer for 6 years i just know we've got somethin here! i will pursue immediatly as should you!
I have been diagnosed for almost 20 years and this is the very first time I have felt that a researcher had actually found something that matches my problems to a tee.
I also used to do an awful lot of volunteering for the NMSS in America and saw how since the mid 90's, the MS Society is catering to and being catered by the Pharmacuetical companies. Needless to say, I don't volunteer anymore. I just simply did not like the direction they were going (too much going to their bike rides and not the people or research).
Sadly, a rather simple solution is NOT what they want. Reminds me of prisons for profit. They need medical marijuana to remain illegal so they can keep those places filled (at taxpayer expense of course).
Starting Tysabri next month, but would be a willing guinea pig for this!
My best friend is a radiologist and he will test me Tuesday morning, first by ultrasound, to see if I have any strictures in my jugular veins. If the ultrasound is negative, he told me I need to do an MRV, which is a specialized MRI for the veins. If they do find blockage, then I can ask an interventional radiologist to do an angioplasty. I am not claiming this is the cure, but my best friend did tell me that these blockages of veins are rare in the normal population. If there is a higher prevalence in MS, then he thinks this theory will be revolutionary. It makes sense to him.
As far a supplements, I've been taking 4,000 IUs of vitamin D for a decade along with calcium/ magnesium, Omega 3, acidophilus and a fairly healthy diet. I think everyone should be taking a minimum of 1,000 IUs of D. It is a crucial vitamin, especially in the winter where we get little sun exposure.
Any news... I'm looking all over the world to be tested and to get treatment if constriction is found.
Just returned from my annual trip to MN and Thanksgiving with the in-laws (We live in Chicago suburb) - one of the first things that I did was check this site.
I see two new entries, but nothing from the "My best friend is a radiologist and he will test me Tuesday morning........."
Is there any news that you can share with me/us?
For obvious reasons, please keep me informed of your progress. Like I wrote above, my first meeting with an MS Specialist is 12/18.
I understand that MS has no set pattern, but if the vein blockage indeed exists - and that this IS a condition significantly more likely with MS individuals, well, I don't know what to think or say.......
I am a true believer, but a "miracle" like this is well, too good to be true!?!
On Friday, November 13th, my neurologist told me that I have MS and that I am to start my drug usage the next week.
This diagnosis did and did not surprise me. Won't bother you with details, but I'm 50, am in excellent shape and easily passed my VEP and test for O.N.
Starting on the 13th, my wife and I began the process of "what's next?" and this led to making an appt to see a local MS Specialist on December 18th.
I am a daily reader of ZH and didn't at first see this post and only caught it on my second or third reading of the day. Like ANON #138857, I am VERY skeptical as an individual, but will make a copy of this post (to bring to my 12/18 appt) and read through the various links.
I had more or less accepted that MS was my new reality - and I don't even know what that means!?!
Thanks and please wish me luck!!!
PS - Do you mean that my daily meal of gold and silver ingots won't cure me?
Thanks, Great article....and i was looking for info on silver!!
Sent this to 2 friends
Not to throw cold water on the party, but as a physician I have seen numerous miracle cures go by the wayside over the years. One problem with this explanation for the disease is that it doesn't explain a host of other findings in MS. The placebo response can be a powerful factor is making cures seem effective in the beginning. While this cure may turn out to be as wonderful as it appears, let's wait til we see some double blind studies before declaring it genuine.
I have MS and I do not see this as a cure. I see it as a relief to the symtoms only. What harm can having restricted veins opened up(preferably by angioplasty) and restoring proper blood flow to the brain do?
Leo, I have read that MS is particularly prevalent in N Hemisphere and S Hemisphere, the further away you move from the equator.
One Australian study has confirmed the ‘latitude gradient’ effect, which shows Tasmanians are eight times more likely to develop MS than Queenslanders. These results complement a new UK finding which links a lack of vitamin D to MS – findings that could lead to an important MS prevention trial, for which Australia is an ideal laboratory.
There is a trial on VitD3 and MS here in Australia...how would that perhaps meld in with the Iron and structure theory? Have you read anything about that? Or would they be perhaps separate avenues of MS causation ie many causes of MS not just one?
Regards and best wishes!
Why governments are selling Vitamin D short
October 23 2009
The link to MS
Multiple sclerosis is thought to be caused by a mix of environmental and genetic factors. And while scientists are still trying to unravel how these interact, a growing body of research points to vitamin D as a key environmental factor.
In people with MS, the immune system malfunctions and attacks the protective coating around nerve cells known as myelin sheaths. The disease can affect sight, balance, continence, speech and more, and reduces life expectancy. Vitamin D’s influence on MS – and other autoimmune diseases such as type 1 diabetes – is thought to be related to the vitamin’s ability to suppress autoimmune responses.
The link between vitamin D and MS was for many years thought to be wild speculation. Now more and more studies point in the same direction: people who have higher levels of vitamin D in their blood early in life are less likely to get MS later in life. Also, MS patients have been found to have low levels of vitamin D in their blood– and the levels appear to be even lower during relapses.
The majority of the Canadian health charties have collected large sums of money over the last 25 years. The origional rationalization for the fund raising by the provincial branches was the money raised by the health charity was being ear marked for "medical" research that would deliver the cure!
I am not aware of where any of the "basic" research funded by the Canadian health charties was medically meaningful, was a "Medical" break thru or contributed to any "medical" break thru!
In early 2001 or so, there were queries from grass root supporters (Provincial branches) and the local doctors about the value of and the questionable results of the medical research being funded by their National organization.
This caused internal debate in the Canadian Health charties at the National level about 100% of the medical research funds raised by the local branches having been allocated to "pure basic" research over the last 15 years with very little to show.
The debate revolved around the future medical research budgets being re allocated from 100% pure "basic" research too the US model of "basic" research and applied" medical research. This caused lots of internal debate, upset researchers and the debate at the national level goes on etc
Most Canadian Health Charties in their web site and fund raising literature high lite advocacy, life style changes, exercise and diet etc with "Medical" research being minimized for obvious reasons.
In Canada, I am afraid it is all about the (Basic)research!.
Heme synthesis problem? Wow who would have thought. I know MS follows the exact same degeneration path as ticks infecting a dog.
" MS Societies of Canada and the U.S.. They are notoriously pro drug companies and will discourage patients from getting tested for blockage or pursuing this treatment."
You nailed it Leo. Nice post.
If it does not provide Big Pharma a high profit drug pipeline... the research does not get funded.
Similarly, if it threatens a Big Pharma a high profit drug pipeline... the research is quashed.
That is why this research and break through came from Italy and not the vaunted "best in he world" US health and medical industries.
This is a common story with many chronic diseases where Europe and Canada are far ahead of the US. Transfusion treatment for Type 1 diabetics is another example. Transfusing insulin producing cells into patients so they attach to the liver and produce insulin eliminating injects for Type 1 diabetics has been successful in Europe since the early 1990s. Why not in America? $1.50 each for test strips that you have to use 4-5 times a day... big profit baby... Diabetic supplies is a huge industry.
Interesting --- psychic Edgar Cayce medical readings for people often suggested spinal manipulation at certain vertebrae to fix a pinching or narrowing in a certain area. Cayce often mentioned this in regards to diabetes and the function of pancreas.
If improper blood flow leaves junk in brain that hurts, and we get medical establishment used to that concept, maybe they will be open to something else like that happening to other internal organs.
Thanks for the story.
never thought i'd see edgar cayce mentioned here...wondering what the akashic records for ben, lloyd, timmy, hank, larry and the rest of the criminals look like...
It will be interesting to see how neurologists react to this treatment. Dr. Paul O'Connor who advises the MS Society of Canada came out yesterday on CBC news to say this treatment is "interesting" but warned "more studies need to be done to confirm these results".
My take on this: if what you saw is true, this treatment isn't just interesting, it is revolutionary. The MS Societies of Canada and the U.S. have long been bought by the drug companies. They will do everything in their power to dismiss and attack this treatment.
But if you watched the whole segment, the treatment benefitted progressive MS patients who had long passed the relapsing-remitting phase. Also, why was this blockage found in MS patients and not in other patients suffering neurological diseases? (It will be interesting to see if other patients suffering from "autoimmune diseases" have similar blockages).
The bottom line is that it's easy to test Dr. Zamboni's theory and if you are suffering from MS and drug therapy doesn't seem to work, then I suggest you explore this treatment.
The MS societies are going to tell you to wait five years for three independent randomized placebo controlled studies before proceeding with any new treatment. Sure, in drug therapies, I agree with this approach (look at the deaths associated with Tysabri).
But this procedure carries little if any risk, so why not try it?
Thanks for the tip above on the http://www.thisisms.com website, very interesting, check this recent post,
Vitamin D Reduces Risk of Multiple Sclerosis
They are the right track here but few people believe that the solution could be so simple,
The new area of Evolutionary Medicine gives the scientific explanation of many chronic illnesses, this is a good article, Paul Ewald is great,
PS, sorry for the triple posting, I didn't want the unintended double posts go to waste.
BTW, Omega-3 deficiency leads to vascular disorders, that may explain the narrowing of arteries. It's a matter of what is cause and what is an effect, very difficult in medicine.
MS incidence shows latitude gradient, higher incidence in higher latitudes. This points towards Vitamin D deficiency, the most potent hormone in the body, not a vitamin,
I think Omega-3 deficiency is also involved, MS is one of many myelin-related neurological disorders,
My recommendation is to try is Cod Liver Oil, Vitamin D + Omega-3. No downside, huge upside if it works. Many friends have benefited, give it a try.
As a surgeon I pass this along:
This is ABSOLUTELY how new treatments are found. The next step will be rejection by the majority of neurologists, followed by a flood of patients who want it done (and get their problems fixed), followed by grudging acceptance of the idea, procedure, and disappearance of the old ways of doing things.
Zamboni, as my daughter would say, you rock.
What amazing news. Just as I was about to give up with finding a means of dissolving symptoms this appears. It also appears that I might have some funds available to do something about it.
I have been diagnosed for 20 years now and have been told secondary progressive is where I am at. That was 4 years ago. I have not accepted anything the neurologists have told me so far. Maybe this will make the change I need to reduce the fatigue and loss of balance that has worsened in recent months.
Amazing developments. Thank you for sharing.
As an MS'er and a ZH'er, I am proud that this article is getting such a great response from everyone. Not only is the story behind the Dr. Zamboni's research fantastic, but his theory is being promoted in a very grass roots fashion. In fact, the MS societies have remained very skeptical about these findings and have actually issued statements warning MS'ers about this research. We have been forced to go at this ourselves, and there are many patients lobbying their doctors for testing, despite the doctor's negative feedback. In any case, I think the ZH community would be very happy to know that the same values espoused in this financial community blog are being mirrored with great success in our MS community at thisisms.com.
Thanks, Leo, for posting this!!
That was an amazing article Leo... thanks for going a little off topic... and sharing that :-)
I've read a bunch of your stuff at naked capitalism and didn't realize you have MS. Obviously you can figure it all out for yourself, but if you haven't seen it, U.S. MS patient ground zero for this can be found here:
This is (one of?) the place where Joan who was in the W5 special posts.
Great read. I have trouble saying Zamboni with a straight face. Passing along to my uncle who suffers from MS.
I realize there are exceptions, but for the most part I take issue with the general idea of congenital or hereditary. While it is certainly valid, it is used to explain away too many conditions (tin: perhaps to make us feel helpless and resort to relying on the "Sick Care system.), while nutrition, behavior and environment are rarely scrutinized to anything approaching a sufficient level.
Similar to the many mis-diagnoses of our economic travails. There are many inputs, many variables, and a lack of sufficient digging.
As a physician I would tell zerohedge readers: this is the kind of research that has the greatest breakthrough potential. Way to go zero heads!
If this is true the implications will be huge. Not only for sufferers... but also in requestioning conventional scientific/medical orthodoxies. I was under the impression MS was probably viral in origin... let's just hope this is for real.
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