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'Post-Liberation' Politics?
A couple of weeks ago, Jane Taber of the Globe & Mail reported, Touched by MS, foes lay politics aside:
Conservative
MP Larry Miller had just finished speaking Monday night when NDP MP
Malcolm Allen rose from his Commons seat, walked over and gave him a
great big hug.
It was a
remarkable gesture in a House that is so often filled with acrimony and
dissent. But this was a remarkable debate — a so-called take-note
debate — on a controversial new procedure to diagnose and treat
multiple sclerosis.
“Those kinds of things don’t happen in the House,” Mr. Miller, the MP for Bruce-Grey-Owen Sound, said Tuesday.
But Mr. Allen (pictured), who lost his father to the disease, was moved
by Mr. Miller’s speech, in which he spoke of his youngest sister, Mary
Lou, 45, who has suffered from MS for nearly 20 years.
There
is a new hypothesis that MS is not an auto-immune disease but a
condition caused by “chronic cerebrospinal venous insufficiency,” or
(CCSVI), which is the narrowing of veins that prevents the blood from
draining from the brain efficiently.The
diagnosis and treatment for this is not performed in Canada and many
MS sufferers have gone abroad to have it done — at great expense and
with some positive results.
Earlier in the debate,
Lethbridge Conservative MP Rick Casson was just barely able to hold on
to his composure as he stood in his place to speak of 38-year-old
daughter, who also has MS.
“I can put a personal touch on
this,” he said. “If I am going to recommend that my daughter takes a
treatment of some kind, I want to make damned sure it will not kill
her, cripple her or make her worse.”
She was diagnosed five years ago; she has two children, is a teacher in Edmonton and is contemplating doing a PhD.
Mr. Casson describes her as “amazing." He wants to ensure that enough
caution is used so that MS sufferers are not given false hope by this
procedure. He notes, too, that not all MS sufferers would benefit from
it.
There was no vote at the end of this debate.
Still, it gave MPs the opportunity to look at and debate the reluctance
of governments to recognize, through funding, this new procedure.
Mr. Miller’s sister, meanwhile, is to be tested soon to determine if
she can have the treatment. If she can, Mr. Miller, says it is likely
she will go try to go to New York to have the procedure done.
In fact, it was noted that some Canadians are travelling to Poland and
other European cities, paying up to $10,000 to have the angioplasty
procedure that opens up the neck veins.
Mr. Miller’s sister was
diagnosed with MS about nearly 20 years ago. Reports (first broadcast
on CTV’s W5) of the controversial procedure by Dr. Paolo Zamboni gave
her “really the first ray of hope or sunshine that she has seen”, he
told the Globe in an interview Tuesday.
She wanted to try the procedure immediately.
“We want it to be a safe procedure … I’d like to see it here (in
Canada),” he said. “If research and science shows that there is
something wrong with it, then fine, we will accept that.
“But
everything we have seen in Europe so far it looks very, very promising
and I just want to see us piggy back on research that is already done
and advance it from here,” he said.
Last night, he spoke about
the provincial and federal governments putting jurisdictional issues
aside and working together on this.
As well, Mr. Miller, who
does fundraising for MS, expressed disappointment with the MS Society,
who he said, “has not yet taken an even broader approach to include
more new treatment options that have shown promise, like CCSVI …”
Ms.
Duncan, whose tenacity sparked the debate, says that at first there
were some politics played last night over the role of the federal
government in health issues.But she said there was a real shift in the debate when “someone on the
government side had the courage to say that we have responsibility
here.”
“It was really good,” she said. “What we’re fighting for
is that these guys be able to have diagnoses and treatment in Canada.
Why are they having to go overseas when everything is available here?”
I have already covered the Liberation Treatment and the ensuing Liberation War.
The good news is that the scientific community is finally starting to
take notice. In Canada, Saskatchewan has become the first province to fund clinical trials into a controversial new treatment for multiple sclerosis pioneered by Dr. Paolo Zamboni and Alberta is pondering paying for the treatment as well.
In the US, researchers at the University at Buffalo, led by the Department of Neurosurgery, will embark on a landmark prospective randomized double-blinded study
to test the safety and efficacy of interventional endovascular
therapy—dubbed “liberation treatment”—on MS symptoms and progression.
To be sure, skepticism abounds as the new MS treatment is far from proven.
But while neurologists warn against false hope, many MS patients are
seeking this treatment and many of them are seeing significant
improvements afterward.
I don't blame them. A large subset of
the MS community has no access to any treatment whatsoever. People like
me who fall under the "secondary progressive" (SP) label of the disease
are asked to wait while the science sorts all the controversy out.
I'm
all for sound scientific methods, but when patients are suffering, and
time isn't on their side, governments need to accelerate the treatment
of this disease. MS is the leading cause of neurological disorders among
young adults. Canada has one of the highest incidence in the world.
The social and economic cost of the disease is huge. Of course, a
revolutionary treatment for MS will upset Big Pharma, but who cares? Even if 10% of MS patients find some benefit with this new treatment, it's worth funding it.
Finally,
I can't overemphasize the importance of taking large doses of vitamin
D, especially if you suffer from chronic diseases. It's interesting to
note that scientists researching the sunshine vitamin are so convinced
of its benefits they’re popping far more than the recommended amounts.
I am up to 20,000 IUs a day, which I've been taking for several months
now in the form of vitamin D liquid drops every morning in a glass of
water (each drop is 1,000 IUs) and feel great (talk to your physician
before increasing your uptake). My disease has progressed extremely
slowly over the last 13 years, but it has progressed. And I've
particularly been through a lot of personal hardship over the last four
years, things I wouldn't wish on my worst enemies, but it has made me a
lot wiser and a lot stronger. "Persevere no matter what" is what I keep
telling myself every day. There is hope, and no matter how bad it gets,
there are people out there suffering a lot worse things in life.
I leave you with a presentation from
Dr. Michael Dake, a professor at the Department of Cardiothoracic
Surgery at Stanford University's School of Medicine. There are two
parts, both worth watching. As we move into 'post-liberation' politics,
many MS patients should finally get the answers they're looking for and hopefully for many of them, the quality of their lives will
drastically improve.
Dr. Dake - Part 1:
Dr. Dake - Part 2:
»
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There is a view that MS is caused by a deficiency of Vitamin D, the sunshine vitamin. It has been noted that the incidence of MS increases dramatically with the distance from the equator. The highest incidence in the world is in the Shetland Islands in the northernmost reaches of Scotland. We have heard here that Saskatchewan and Argentina also have unusually large incidences.
You won't here this view promulgated in the corporate controlled media, if a therapy or preventative regime was established for those at risk based on nutritional preventative measures, corporate profits on current therapies would plummet.
Leo,
this is a fairly interesting Futures Mag article on one pension fund manager and asset allocation strategy implementation.
Lee Partridge: A diversified approach to diversification
http://www.futuresmag.com/Issues/2010/August-2010/Pages/A-diversified.aspx?page=1
EDITED
Good luck Leo, I'll pray that you find what works for you.
When profit driven private corporations gain control of tratments, they turn them into profit centres and innovation ceases. In a free enterprise world, coporations and cartels without market dominance, compete with each other to find the next, better treatment. New treatments or cures have the effect of impairing or eliminating the previous dominant providers profit.
The case of MS is only the most recent case of coporate dominance stifling innovation and progress. There is a galloping epidemic of diabetes. The root cause is well understood ... adoption of the corporate provided diet. A diet high in concentrated simple sugars and carbohydrates (which are addictive) will eventually exhaust the body's ability to metabolise it. The confectionary, fast food and processed food industries maek huge profits selling this cheap "food" and oppose any attempt to demonize it. Governments rely on these large monopolies for campaign funds, and like the tobacco companies before them, those industries actively campaign against the knowledge and treatments for the disease. AIDS is another case in point..for profit corporations have found a way to charge huge sums for treatments, not cures. They have no incentive to find a cure and every incentive to dismiss any progress on this front.
It is no wonder that innovation in MS and other research is being done outside the corporate controlled world by public institutions as in India and now, Saskatchewan.
yes the herb helps a lot if you can get it.
http://www.safeaccessnow.org/article.php?id=4558
looks like it cures cancer too.
http://www.gsalternative.com/2010/05/cannabinoids-kill-cancer/
If MS is caused by narrowing of the veins, then a trial of applying castor oil all over the neck overnight is worth a try. I would try it for 2-4 weeks. Topical castor oil has resolved many of my chronic problems.
Basia,
Thanks for sharing, but the problem is veins are subject to re-narrowing, which is why some doctors prefer stents over balloon angioplasty. Will look into castor oil and its properties.
Cue Kuhn's "Structure of Scientific Revolutions" on mainstream resistance to this potentially lifesaving treatment. Any paradigm shift will be catalysed by the internet. Keep a good thought.
Leo, I was in a Mexican clinic (started and ran by an American bio-chemist) 4 yrs. ago. I was in the process of ridding myself of cancer by detoxifying there. I met a person who was suffering from the early stages of MS. We arrived there at the same time and stayed for the same duration. We often talked during our stay and he told me of the treatment they were using and the reasons behind them. In the 3 wks. we were there he regained some feeling in his feet and was able to move toes he hadn't moved for some months ( apparently some of the nerve damage was not yet permanent). The treatment involved heavy metal detoxifying and vitamin D doses along with general detox and improvement of diet. They also suspected that a relatively benign childhood virus combined w/mercury exposure might be a common culprit for many degenerative nerve diseases. Turns out this fellow had converted a building of dental offices into his real estate headquarters some 10 yrs. earlier. He was very wealthy and had exhausted his options in the US before coming to this place. He was very happy with the progress he made while there. I have not kept in touch so I do not know his state of health now, but before we left he assured me he would be revisiting this clinic on a consistent basis. Just thought you might like to hear about this. Best of wishes!
The next untruth to be flipped like an HFT pancake is the fact that our emotions drive 90% of illness. If you can be caused to be worried, fearful, angry, overly critical, etc YOU WILL HAVE DIS EASE. (of course, correctly channeled anger in relation to prozac dosed Hal 9000 robots on antiquated fiat tractors not withstanding...)
Dude, where were you during Cognitive Dissonances's 4 part expose' on the responsibility of our mental state for the mess we find ourselves!
The evil weed is reported to ease MS progresssion
Cilantro? Really?
MS occurs in areas of the world that have good sanitation (i.e. low parasitic loads) http://www.ms-network.com/intl/msnetwork/general/guide_understanding_ms/... . Before I had anyone start f'ing around with my brains blood supply, I would seriously consider getting a hook worm, or tapeworm infection. If the parasite test fails, then it is easily removed with anti-parasitic drugs. Give it a try.
There's also clusters all over Scotland, and lots of farmers have MS-like diseases, possibly as a result of the heavy exposure they get to organophosphates.
These chemicals, in sheep-dip and the like, are in the same family as the chemicals that many aircrew are exposed to in aircraft with leaking engine / pack oil seals.
Once again, MS-like symptoms can be found in aircrew flying some of these aircraft. pprune.com has a bunch of threads. Search on 'flying gaschamber'.
Leo,
NewScientist.com has a lot of good info as well. I'm sure you have probably scoured the bowels in the intertubes so this comment is aimed at your readers more than you seeking alternatives. The way this "disease" acts it's almost as if we are dealing with multiple causes with similar symptoms.
Disclosure: I am not a doctor but I have seen them on TV
Best of luck to you Leo. My dad died from ALS and it had a profound effect on me and our family. I hope and pray that they get a handle on neuro-muscular diseases. My guess is when they get a breakthrough it will take them all down.
Magua
I feel for you and your family because I lost my dad to ALS too and it was devastating to me. The kicker was union related though. He had worked at a steel plant since he was 20 yrs old. They were offering early retirement plans to get the older guys out so my dad took it at 48 yrs, he wasn't eligible until 52 for the medical benefits. He found out just before he turned 49 that some chronic health issues he had were actually ALS and he died less than a year later at 49 yrs old without his nice medical care he had paid into for 28 years. He was treated by medicaid therefor was unable to get the life prolonging treatments that he deserved.
Best of luck to you Leo. Persevere!
Thanks Leo, my wife has MS. Very interesting article.
Great article, Leo! The importance of Vitamin D, esp. D3 cannot be stated often enough.
Leo, you might want to try fermented cod liver oil as a source for your vitamin D. You can take capsules--it's nasty by the spoonful. It seems to help to take it with raw butter oil from grassfed animals: http://www.radiantlifecatalog.com/product/528/superfoods-supplements
I don't know if I'm cured, but I no longer have any symptoms whatsoever, and other problems have gone away as well.
I think the best is from Vital Choice, the Sockeye Salmon Oil. It is amazing how they make it. Pure as can be and chock-full of the most useful Vitamin D3, Omega-3 and co-enzymes out the wha-zoo.
Perhaps Vitamin D3/Omega-3 would "grease the wheels" for autism research, as well? I have seen an autistic boy get much more grounded after a regimen of this very product. It is at least interesting...
http://www.vitalchoice.com/shop/shop_product.cfm?productid=102
Best of luck, Leo!
:D
We all have to really understand that no procedure like this will be approved in the US while the major pharma companies can rake in tens of thousands from endless drug therapies.
The same goes for cancer. Just as our banking system is being held hostage by the major banks, the medical system is under the thumb of the pharma companies.
Anyone wanting absolutely objective treatment of a condition has to go overseas, get a diagnosis, and a treatment plan ......and then try to force the doctors here to abandon their payoffs and utilize what might actually work.
Given what i know of the medical community, this is a 50/50 proposition in the best of circumstances. Its hard to get a doctor to walk away from the type of payoffs now being made by the pharma companies ......
I believe that I really do absorb the 'hole' complexity bullshit (oh, how I love to include real language when attempting to express my thoughts/feelings!).
I have monitored Leo for awhile and I cede that he is a very intelligent fellow. I love his optimistic outlook and feel compassion for that angle. Very brave (foolish?) only time as it unfolds will determine results, right?
I have long suspected that ethical issues plague pharma just as they so obviously do plague other concerns of We.
Life is beautiful and amazing.
I really feel that a time will come when BULLSHIT will lose it's value and we can begin again to relate based upon precepts that are clearly defined and anchored to a common truth.
That's my B.S. of the day and thank you Zerohedge for both allowing it and educating the aspect of myself that has the audacity to express it.
Some more videos on the Buffalo trial:
Dr. Levy and Dr. Siddiqui’s segment Part 1:
Dr. Levy and Dr. Siddiqui’s segment Part 2:
Amen
One can only wonder how many other problems have relatively simple solutions that have not been found because we have been looking in the wrong places. Good luck Leo.
My wife (27 years) is afflicted by MS. I am in the process of getting a job that promises to compensate me well enough that I can afford to fund her access to this treatment. She is currently on Copaxone at $36,000 per year and it is not doing her one damn bit of discernible good. Killing me because she is just falling apart and for less than is wasted on her Pharma profit solution she might actually get better?
We've tried vitamin D3 too and it does seem to help, but not a solution for her. I take 10,000 I.U. per day though and have for over a year. I believe it to be a good thing.
Best of luck to you, Leo. I've known a few people with MS and it doesn't look like a lot of fun, but I would consider each one of those folks to be a portrait of perseverance.
Regards, Darren
Long piece about how the treament game is played but worth the time to dig into. The same old snakes have their fingers in that pie too.
http://www.deepcapture.com/michael-milken-60000-deaths-and-the-story-of-...
My closest friend's father was recently diagnosed with MS. He has been taking 5,000 and 10,000 IU of vitamin d on opposing days. He claims it has effectively repaired him.
http://tinyurl.com/3ajhq2t
Seems that the relationship is being established.